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North Texas Giving Day 2018

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Wait. What do you MEME? North Texas Giving Day is less than 30 days away!!! Check out our Giving Day page and set your calendar now for September 20. Early giving opens on September 10!

Thank you for the recent feature, My Sweet Charity!

North Texas Giving Day FAQs
  • What is it? 
    • Powered by the Communities Foundation of Texas, North Texas Giving Day is an 18-hour online giving event designed to empower every person to give back to their community by supporting local nonprofits and causes they care about in one easy-to-use platform.
  • How long has it been around?
    • 2018 is the 10th year of North Texas Giving Day! In 9 years, $195 MILLION has been raised for nonprofit organizations in North Texas. It is the largest single day of giving in the United States.
  • What is the Giving Day goal for BIND this year? 
    • With your help, we will raise $20,000 in critical operating funds for our program.  In 2017, BIND donors raised over $13,000 in a single day of giving!
  • Will a small gift make a big impact? 
    • YES! If every social media follower of ours makes a $25 donation on Giving Day, we will raise $50,000! Plus, North Texas Giving Day brings the opportunity for matching gifts, prizes and bonus funds from Communities Foundation of Texas and special donor groups.
  • When can I donate?
    • Early giving opens on September 10 and continues through the BIG DAY on September 20. Gifts made early will be loaded onto the BIND Giving Day Page first thing on September 20.

Registration Open for Warrior Brain Training

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We’re pleased to announce that Warrior Brain Training is coming to Plano in August & October!  Through a collaborative effort between BIND, The Center for Brain Health and the Plano Public Library, this interactive brain performance training will be provided free of charge to Veterans and Active Duty Military Service Members.

UPDATE: The August Warrior Brain Training event is FULL.  Registration is currently open for Veterans, Active Duty Military Service Members AND their caregivers for the October 10/11 session.  

Register today – space is limited:

Click Here To Register

 

Brain Tumor Awareness

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May is also Brain Tumor Awareness Month

By Jenny

Along with stroke awareness month, May is also Brain tumor awareness month. Although most people have heard of Brain tumors, few know how widespread this incurable disease is. According to the National brain tumor society:

  • An estimated 700,000 Americans are living with a brain tumor
    • 80% tumors are benign
    • 20% tumors are malignant
  • An estimated 78,980 people will receive primary brain tumor diagnoses in 2018
    • 55,1500 will be benign
    • 23,830 will be malignant
  • The average survival rate for all malignant brain tumor patients is only 34.7%
    • Male: 33.8%
    • Female:4%
    • For the most common form of primary malignant brain tumors, glioblastoma multiforme, the five-year relative survival rate is only 5.5%
  • An estimated 16,616 people will die from malignant brain tumors (brain cancer) in 2018
  • The most prevalent brain tumor types in adults:
    • Meningiomas, which make-up 36.6% of all primary brain tumors

Gliomas (such as glioblastoma, ependymomas, astrocytomas, and oligodendrogliomas), which make-up 74.6% of malignant brain tumors

Unfortunately, more than any other cancer, brain tumors can have lasting and life-altering physical, cognitive, and psychological impacts on a patient’s life.

This means malignant brain tumors can often be described as equal parts neurological disease and deadly cancer.

It has been my experience that saying your tumor is benign gives people the impression that it is curable and isn’t a very serious situation, however this is not the case. Even benign brain tumors can be deadly if they interfere with portions of the brain responsible for vital bodily functions. It is also pretty safe to say that brain surgery is seldom benign.

There are more than 130 different types of brain tumors, many with their own multitude of subtypes. The table below shows the types of tumors that a few of our members have been diagnosed with   :

 

Name Tumor type Age at diagnosis Initial symptoms
Jenny Oligodendroglioma 37 Seizure
Jeff Astrocytoma 20 Found while undergoing unrelated medical testing
Rick Central neurocytoma 35 Uncontrollable, severe headache

In my obviously biased opinion, research into this disease and possible cures is grossly underfunded and ineffective. Data collected by Central Brain Tumor Registry of the United States (CBTRUS) in CBTRUS Statistical Facts Report of Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2010 – 2014 suggest:

  • Despite the amount of brain tumors, and their devastating prognosis, there have only been four (4) FDA approved drugs – and one device – to treat brain tumors in the past 30 years.
    • For many tumor types, surgery and radiation remain the standard of care.
    • There has never been a drug developed and approved specifically for malignant pediatric brain tumors.
    • The four approved drugs for brain tumors have provided only incremental improvements to patient survival, and mortality rates remain little changed over the past 30 years.
  • Between 1998 and 2014, there were 78 investigational brain tumor drugs that entered the clinical trial evaluation process. 75 failed. That is a 25:1 failure ratio in developing new brain tumor treatments over the past two decades.

It is often difficult to talk about such a hard topic, but always remember statistics don’t paint the whole picture. Brain tumor warriors are usually the bravest, toughest fighters you will ever meet. This is why we should all “Go Gray in May” to spread the word and get a spotlight aimed at this disease so that we can give hope to and encourage those living with or affected by brain tumors. NO ONE FIGHTS ALONE!

~Jenny, BIND Member

Better Speech and Hearing Month!

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Speech-Language Pathologists and Audiologists have played an instrumental role in my recovery. In the beginning of my stroke, I had global aphasia; I couldn’t speak or understand language. With the help of these professionals, I regained my communication.

May is Better Hearing & Speech Month which raises awareness about communication and the ability to hear, understand, speak, and swallow. Audiologists and Speech-Language Pathologists (SPLs) are professionals that diagnose and treat communication disorders.

Speech-Language Pathologists

Communication problems after a brain injury are common. Communication disorders occur in 25% to 40% of stroke survivors. This figure doesn’t account for those with brain tumors, brain infections, traumatic brain injuries, or anoxia. There are 1 million people living with aphasia in the United States.

Article Source: https://tactustherapy.com/acquired-communication-disorders-following-stroke/

Speech-Language Pathologists perform many functions to treat brain injury. Some of the special work they do includes treatment for the following:

  1. Dysphagia – They help patients relearn how to swallow which prevents malnutrition and dehydration.
  2. Aphasia – They treat numerous forms of aphasia including the following: receptive, reading & writing problems, and expressive aphasia
  3. Dysarthria & Apraxia – They help patients overcome speech difficulties.
  4. Cognitive Communication Difficulties – They help patients overcome executive function deficits.

Audiologists

Hearing loss can occur after a brain injury. Carolyn Rocchio of the Brain Injury Association says the following about traumatic brain injury:

“Hearing problems can occur for a number of reasons, both mechanical and neurologic, particularly when the inner ear and/or temporal lobes have been damaged. All patients should have an otoscopic examination and hearing screening followed by behavioral testing. External bleeding in the ear canal, middle ear damage, cochlear injury, and/or temporal lobe lesions can cause auditory dysfunction.” (Rocchio, 1998)

Article Source: http://EzineArticles.com/534833

Diagnostic tests are needed from an Audiologist and ENT (ear, nose, throat) doctor to determine the cause of hearing loss. The hearing tests could include one or more the following:

  1. Audiogram – This test presents a series of frequencies from low to high pitches.
  2. Speech Testing – This test looks at how well words are listened to and repeated.
  3. Tympanometry – This test evaluates the middle ear function and stiffness of the eardrum.
  4. ABR (Auditory Brainstem Response) – This test measures the timing of electrical waves from the brainstem to clicks in the ear.
  5. Otoacoustic Emissions (OAEs) – This test evaluates the sounds given off by the inner ear when responding to a sound.
  6. Electrocochleography (ECOG) – This test identifies cochlear nerve issues and Meniere’s disease.

Article Source: https://www.asha.org/public/hearing/Otoacoustic-Emissions/

Some Audiologists perform Auditory Processing (CAPD) Tests. However, not every audiologist formally acknowledges CAPD. Explanations about different CAPD Tests are included in the following link: https://www.audiologyonline.com/articles/apd-in-children-time-compressed-11953

With information from the diagnostic tests, Audiologists identify the source of the hearing issue:

  1. Tinnitus occurs when there’s buzzing, ringing, or hissing in the ears.
  2. Hyperacusis (i.e. noise sensitivity) occurs when a sound is uncomfortable.
  3. Meniere’s Syndrome occurs there’s excessive pressure on the inner ear.
  4. Auditory Agnosia (i.e. CAPD) occurs when there’s a problem in distinguishing sounds.

A treatment plan will be made which could include hearing devices, Bluetooth devices, telephones, FM systems, and/or speech therapy.

Article Source: http://synapse.org.au/information-services/hearing-problems-after-a-brain-injury.aspx

Go out today and thank SPLs & Audiologists for the special work they do in helping brain injury survivors communicate….

~Megan, BIND Member

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Do You Smell Burnt Toast?

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May = STROKE AWARNESS MONTH!

By: Carrie

So it sounds like a bad joke (it is and it’s not) but I heard it again this morning watching reruns of my favorite show Supernatural.

Person 1:“Do you smell burnt Toast?”

Person 2:”Are you having a Stroke? “

Well I didn’t when I had mine, but I’ve heard this on other TV shows and other random places. So, I thought “LMGT”= Let Me Google That and this is what pops up:

And with that google search I got this:

“There’s a popular myth that smelling burnt toast is a sign of a brain tumor, or that you’re having a stroke,” he said. “This isn’t true. “A stroke can affect any area of your brain, so it’s possible that your sense of smell can be affected, but there’s no particular smell that you need to worry about.” Sep 26, 2016

http://www.iran-daily.com/News/169295.html

There are 2 types of Stroke:

Ischemic stroke occurs as a result of an obstruction within a blood vessel supplying blood to the brain. It accounts for 87 percent of all stroke cases. Hemorrhagic stroke occurs when a weakened blood vessel ruptures. But the most common cause of hemorrhagic stroke is uncontrolled hypertension (high blood pressure).

Here is just a small break down of our members that have had strokes:

Member Age at time of Stroke Type of Stroke
Carrie 38 Hemorrhagic
Christopher 38 Hemorrhagic
Debbie 54 Hemorrhagic
Jim 64 Hemorrhagic
Mark 58 Hemorrhagic
Chris 50 Ischemic
Jenny 37 Ischemic
Jill 51 Ischemic
Megan 29 Ischemic
Michael 45 Ischemic
Ted 51 Ischemic
Yvette 40 Ischemic

 

Unfortunately not all Stroke signs are obvious, (I didn’t really have any and everybody’s are different) but you can tell if someone is having a stroke with this quick tool:

The American Stroke Association developed this easy-to-remember guide to help identify the signs of a stroke.

F – Face drooping. Is one side of the person’s face drooping or numb? When he or she smiles, is the smile uneven?
A – Arm weakness. Is the person experiencing weakness or numbness in one arm? Have the person raise both arms. Does one of the arms drift downward?
S – Speech difficulty. Is the person’s speech suddenly slurred or hard to understand? Is he or she unable to speak? Ask the person to repeat a simple sentence. Can he or she repeat it back?
T – Time to call 9-1-1. If any of these symptoms are present, dial 9-1-1 immediately. Check the time so you can report when the symptoms began.

For facts and Information visit:

http://www.stroke.org/

Signs and Symptoms of Stroke

Knowing the signs and symptoms of a stroke is the first step to ensuring medical help is received immediately. For each minute a stroke goes untreated and blood flow to the brain continues to be blocked, a person loses about 1.9 million neurons. This could mean that a person’s speech, movement, memory, and so much more can be affected.

Learn as many stroke symptoms as possible so you can recognize stroke FAST and save a life!

Stroke symptoms include:

SUDDEN numbness or weakness of face, arm or leg, especially on one side of the body
SUDDEN confusion, trouble speaking, or understanding
SUDDEN trouble seeing in one or both eyes
SUDDEN trouble walking, dizziness, loss of balance or coordination
SUDDEN severe headache with no known cause

Call 9-1-1 immediately if you observe any of these symptoms.

Note the time of the first symptom.
This information is important and can affect treatment decisions.

http://www.stroke.org/understand-stroke/recognizing-stroke/signs-and-symptoms-stroke

#ourvolunteersareawesome

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*Volunteers at BIND are such special people. Last year, alone, we were gifted with 2,620 volunteer hours, which is the equivalent of a full time employee working 40 hours a week. They are truly indispensable and we want them to know how thankful we are for them. They are heroes in championing our mission and supporting our cause. They help make a difference in the lives of BIND Members.

Every April we celebrate Volunteer Appreciation Month and it was a pleasure for me to have had the opportunity to interview just a few of the 40+ dedicated BIND volunteers.

Martha

  1. How did you get involved with BIND?

I met Valerie in rehab. I was her patient. She knew I was involved with arts and crafts and asked me to volunteer.

  1. Do you have any pets?

I have no pets except my husband, Kiver.

  1. What do you do to unwind?

I have been playing the piano since I was 3.

What members are saying about Martha:

-Her willingness to teach Art inspires me to be more creative.

-She brings the best out in me.

-She is a very good teacher and talented artist.

-She has a very good since of humor (she has to, to put up with all of us.).


Neeru

  1. How did you get involved with BIND?

I saw Yvette, Mark and Kevin do a presentation about BIND and loved it.

  1. Do you have any pets?

No, I do not.

  1. What do you do to unwind?

I like to read and watch T.V. a little.

What members are saying about Neeru:

  • I really enjoy playing brain games with her. It is amazing how much effort she puts in to coming up with something new each week.
  • She is just nice.
  • She really gets into her work to help others.
  • She is generous, talented, caring and sociable.


Emilie

  1. How did you get involved with BIND?

Medical Center Plano referred me here. I was an RN there for 50 years.

  1. Do you have any pets?

I don’t have any pets.

  1. What do you do to unwind?

Some of my favorite things are cooking, taking care of my herb garden, and watching T.V.

What members are saying about Emilie:

-She is smiling all the time.

-She is very helpful and goes above and beyond what needs to be done.

-She is a doll; she’s like the Mom that looks out for us all.

-She is kind, conscientious, and caring.


Karen

  1. How did you get involved with BIND?

I heard about BIND through the National Brain Tumor Society in Ft. Worth. I talked to members at a booth in the brain tumor support group. I starting volunteering after that.

  1. Do you have any pets?

I don’t but I have two grand dogs, which are corgi puppies, and are very, very cute.

  1. What do you do to unwind?

I enjoy quilting with my church, reading, and working out at the cancer fitness center with my husband.

What members are saying:

-She is very helpful and takes good care of us.

-She is very compassionate and just a nice lady.

-Big heart full of smiles.

-She fits in with all of us and relates well to everybody.

E.J.

  1. How did you get involved with BIND?

I am a student in Brightwood College and I got assigned to BIND to do my first field work.

  1. Do you have any pets?

No, but I used to have dogs.

  1. What do you do to unwind?

I watch movies, workout and play tennis every once in a while.

What members are saying:

-He brings such positive energy when he walks into the room.

-He does an outstanding job.

-He is a super nice guy.

-He is the most helpful young man I’ve ever seen.

This BLOG Post was Prepared by:

~Jenny, BIND Member

~With support from The Communications Unit

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

WOW: World of Work with UTD

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Getting to know Blanca & Sydney!

During Spring Break 2018, we welcomed two UTD students visiting BIND through the World of Work program (WOW!).

Enjoy the Q&A, prepared by Agnes & Megan.

Tell me about yourself.

Blanca: I’m 26 years old. I’m a mom and wife. I have 1 son and 3 daughters.

Sydney: I’m 21 years old. I’m from Florida. I have an older brother and a golden retriever named Lucy.

What is your college major and why did you choose to study in this field?

Blanca: I’m majoring in Neuroscience. I chose this field because I have a daughter with Spina Bifida. I wanted to learn as much as I could about my daughter’s condition. In addition, I have a sister that passed away from a brain tumor.

Sydney: I’m majoring in speech pathology. I chose this field because I have an older brother that is autistic and I do many therapies with him.

How would other UTD students describe you?

Blanca: I’m motivated, hard-working, and very busy. I’m known as a super-mom.

Sydney: I’m quiet and studious.

What have you observed about BIND members?

Blanca: I’ve seen amazing things. The motivation level is high. Everybody is helping each other.

Sydney: Everyone is happy to be here and they are enthusiastic about BIND.

Where do you see yourself in 5 years?

Blanca: I will have completed my degree and I will have a job in a research facility.

Sydney: I will have graduated with my masters in speech pathology and I will be working in a hospital.

 

 

 

 

Synapse Laps!

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CALLING ALL SUPERHEROES!

Saturday, March 24, 9 am to Noon
1416 Gables Court, Plano TX

Join us for the first-ever Synapse Laps event for BIND. Walk, jog, ride or roll with us at the BIND office park – every lap is 1/3 mile – and we’ll help count your laps.  Survivors, families, kids, and leashed pets are all welcome.

*Superhero costumes are encouraged*

This event is sponsored by Medical City Plano and a light lunch is sponsored by California Pizza Kitchen. We’ll also welcome therapy animals from Equest, games and activities for all ages, and the BIND Store will be open for business (BIND hats and shirts will be on sale!).  Thank you as well for your sponsorship to Modern Woodman Financial and Select Rehab Hospital in Denton.

Registration for Synapse Laps is FREE.  We are appreciative of those who can give a suggested $5/person donation onsite.  PLEASE ARRIVE PRIOR TO 9:15 am to park inside of our office park. By 9:20, the lot will be closed to through traffic so our walkers can safely begin at 9:30.  Other Questions?  Email us by clicking here.

REGISTER ON EVENTBRITE BY CLICKING HERE

March On…to a Support Group

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March 2018 Calendar for BLOG PDF

Area Brain Injury Support Groups

Allen:

Every 2nd Saturday each month
1:00 – 2:00 pm

Post-Acute Medical Rehabilitation Hospital
Meet in Team Conference Room
1001 Raintree Circle
Allen, TX 75013

972-908-2033 [Felicia] 972-908-2023 [Lesli]

Arlington:

Every 2nd Tuesday each month
1:00 – 2:30 pm

Center for Counseling
(provides simultaneous support groups for TBI survivors and caregivers)
301 South Center Street, Suite 214
Arlington, TX 76010

817-983-1087 [Deanna]

Dallas:

Every 1st Tuesday each month
2:00 – 3:00 pm

Baylor Institute for Rehabilitation
Tom Landry Building, 5th Floor
Meet in Yvonne Gawthier Conference Room

411 North Washington Avenue, Suite 5000
Dallas, TX 75246

214-820-5967 [Donna]

Every 1st Tuesday each month
6:30 – 8:00 pm

UT Southwestern
Zale Lipshy University Hospital
5151 Harry Hines Boulevard
Dallas, TX 75235

214-648-1754 [Dr. Brewer]

Denton:

Every 6 weeks on Wednesday
5:00 – 6:30 pm

Medical City Denton
Professional Office Building, Suite 310B
3535 South Interstate 35 E
Denton, TX 76210

940-384-3970 [Zachary or Carolyn]

Every 2nd Thursday each month
6:00 – 7:30 pm

Select Rehabilitation Hospital
Meet in Cafeteria
2620 Scripture Street
Denton, TX 76201

940-297-6500 [Front Desk]

Fort Worth:

Every 1st Tuesday each month (Aphasia only)
3:00 – 4:00 pm

Center for Neuro Skills (CNS)
6940 Harris Parkway
Fort Worth, TX 76132
kscheirman@neuroskills.com [Kristen]

Frisco:

Every 2nd Tuesday each month
6:00-7:00 pm

Baylor Institute for Rehabilitation
Meet in Café
2990 Legacy Drive
Frisco, TX 75034

kirunkle@bir-rehab.com [Kirsten]

Irving:

Every 2nd Wednesday each month
3:00 – 4:00 pm

Baylor Scott & White Medical
Office Building II
5th Floor Rehab Unit

1901 North MacArthur Boulevard
Irving, TX 75061

972-579-8511 [Renee] Renee.vickers@bswhealth.org

 

Every Friday (Aphasia only)
1:00 – 2:00 pm

Center for Neuro Skills (CNS)
1320 West Walnut Hill Lane
Irving, TX 75038

972-580-8500
kscheirman@neuroskills.com

McKinney:

Every 3rd Friday each month
10:00 am – 12:00 pm
Every 1st Tuesday each month
7:00 – 8:30 pm

Stonebridge United Methodist Church
1800 South Stonebridge Drive
McKinney, TX 75070

940-206-2069

Every 2nd Wednesday each month
11:30 – 12:30 pm

Medical City McKinney
4500 Medical Center Drive
Meet in Classrooms 3 and 4
McKinney, TX 75069

972-548-5491 [Jennifer] (RSVP’s appreciated 1 week in advance)

Plano:

Every 1st Monday each month
3:00 – 4:30 pm

Medical City Plano
Medical Office Building 3, 1st Floor
Meet in Community Classroom

3901 West 15th Street
Plano, TX 75075

972-519-1583
(RSVP’s appreciated 1 week in advance for provided lunch)

Every 1st Friday each month
2:00 – 3:00 pm

Accel Rehabilitation Hospital
2301 Marsh Lane
Plano, TX 75093

214-695-6479 [Nikole]

Every 2nd Tuesday each month
7:00 – 9:00 pm

Grey Matters North Texas Brain Tumor Support Group
HealthSouth Plano Rehabilitation Hospital
2800 West 15th Street
Plano, TX 75075

GreyMattersNorthTexas@yahoo.com [Karen] www.Greymatters.us


Every other Wednesday
(twice per month)
11:00 am – 2:00 pm

Nueva Vida (Spanish Speaking Group)
BIND Clubhouse
1416 Gables Court
Plano, Texas 75075

972-769-2463
Email for dates: members@thebind.org

Richardson:

Every 4th Friday each month at
1:30 – 3:00 pm

HealthSouth Rehabilitation Hospital
Meet in Cafeteria
3351 Waterview Parkway
Richardson, TX 75080

972-400-2196 [Laura]

Various Locations:

Social, community-based events scheduled every month
Young Adult Group Survivors (YAGS)
gordlovesloopy@sbcglobal.net [Rebecca]

*Please email or call BIND with any information on changes or addition to support groups in the area: outreach@thebind.org or 972-769-BIND (2463).

Last updated: 2/26/2018                  

Pizza With Purpose

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Let’s do Lunch!  Or dinner…..at California Pizza Kitchen in Plano – March 7 & 8.  Present this flyer to your server and they’ll donate 20% of your total bill to BIND.  Thank you to the Willow Bend CPK manager, Rachel, and her team for supporting our organization!