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Events

Registration Open for Warrior Brain Training

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We’re pleased to announce that Warrior Brain Training is coming to Plano in August & October!  Through a collaborative effort between BIND, The Center for Brain Health and the Plano Public Library, this interactive brain performance training will be provided free of charge to Veterans and Active Duty Military Service Members.

UPDATE: The August Warrior Brain Training event is FULL.  Registration is currently open for Veterans, Active Duty Military Service Members AND their caregivers for the October 10/11 session.  

Register today – space is limited:

Click Here To Register

 

Brain Tumor Awareness

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May is also Brain Tumor Awareness Month

By Jenny

Along with stroke awareness month, May is also Brain tumor awareness month. Although most people have heard of Brain tumors, few know how widespread this incurable disease is. According to the National brain tumor society:

  • An estimated 700,000 Americans are living with a brain tumor
    • 80% tumors are benign
    • 20% tumors are malignant
  • An estimated 78,980 people will receive primary brain tumor diagnoses in 2018
    • 55,1500 will be benign
    • 23,830 will be malignant
  • The average survival rate for all malignant brain tumor patients is only 34.7%
    • Male: 33.8%
    • Female:4%
    • For the most common form of primary malignant brain tumors, glioblastoma multiforme, the five-year relative survival rate is only 5.5%
  • An estimated 16,616 people will die from malignant brain tumors (brain cancer) in 2018
  • The most prevalent brain tumor types in adults:
    • Meningiomas, which make-up 36.6% of all primary brain tumors

Gliomas (such as glioblastoma, ependymomas, astrocytomas, and oligodendrogliomas), which make-up 74.6% of malignant brain tumors

Unfortunately, more than any other cancer, brain tumors can have lasting and life-altering physical, cognitive, and psychological impacts on a patient’s life.

This means malignant brain tumors can often be described as equal parts neurological disease and deadly cancer.

It has been my experience that saying your tumor is benign gives people the impression that it is curable and isn’t a very serious situation, however this is not the case. Even benign brain tumors can be deadly if they interfere with portions of the brain responsible for vital bodily functions. It is also pretty safe to say that brain surgery is seldom benign.

There are more than 130 different types of brain tumors, many with their own multitude of subtypes. The table below shows the types of tumors that a few of our members have been diagnosed with   :

 

Name Tumor type Age at diagnosis Initial symptoms
Jenny Oligodendroglioma 37 Seizure
Jeff Astrocytoma 20 Found while undergoing unrelated medical testing
Rick Central neurocytoma 35 Uncontrollable, severe headache

In my obviously biased opinion, research into this disease and possible cures is grossly underfunded and ineffective. Data collected by Central Brain Tumor Registry of the United States (CBTRUS) in CBTRUS Statistical Facts Report of Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2010 – 2014 suggest:

  • Despite the amount of brain tumors, and their devastating prognosis, there have only been four (4) FDA approved drugs – and one device – to treat brain tumors in the past 30 years.
    • For many tumor types, surgery and radiation remain the standard of care.
    • There has never been a drug developed and approved specifically for malignant pediatric brain tumors.
    • The four approved drugs for brain tumors have provided only incremental improvements to patient survival, and mortality rates remain little changed over the past 30 years.
  • Between 1998 and 2014, there were 78 investigational brain tumor drugs that entered the clinical trial evaluation process. 75 failed. That is a 25:1 failure ratio in developing new brain tumor treatments over the past two decades.

It is often difficult to talk about such a hard topic, but always remember statistics don’t paint the whole picture. Brain tumor warriors are usually the bravest, toughest fighters you will ever meet. This is why we should all “Go Gray in May” to spread the word and get a spotlight aimed at this disease so that we can give hope to and encourage those living with or affected by brain tumors. NO ONE FIGHTS ALONE!

~Jenny, BIND Member

Better Speech and Hearing Month!

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Speech-Language Pathologists and Audiologists have played an instrumental role in my recovery. In the beginning of my stroke, I had global aphasia; I couldn’t speak or understand language. With the help of these professionals, I regained my communication.

May is Better Hearing & Speech Month which raises awareness about communication and the ability to hear, understand, speak, and swallow. Audiologists and Speech-Language Pathologists (SPLs) are professionals that diagnose and treat communication disorders.

Speech-Language Pathologists

Communication problems after a brain injury are common. Communication disorders occur in 25% to 40% of stroke survivors. This figure doesn’t account for those with brain tumors, brain infections, traumatic brain injuries, or anoxia. There are 1 million people living with aphasia in the United States.

Article Source: https://tactustherapy.com/acquired-communication-disorders-following-stroke/

Speech-Language Pathologists perform many functions to treat brain injury. Some of the special work they do includes treatment for the following:

  1. Dysphagia – They help patients relearn how to swallow which prevents malnutrition and dehydration.
  2. Aphasia – They treat numerous forms of aphasia including the following: receptive, reading & writing problems, and expressive aphasia
  3. Dysarthria & Apraxia – They help patients overcome speech difficulties.
  4. Cognitive Communication Difficulties – They help patients overcome executive function deficits.

Audiologists

Hearing loss can occur after a brain injury. Carolyn Rocchio of the Brain Injury Association says the following about traumatic brain injury:

“Hearing problems can occur for a number of reasons, both mechanical and neurologic, particularly when the inner ear and/or temporal lobes have been damaged. All patients should have an otoscopic examination and hearing screening followed by behavioral testing. External bleeding in the ear canal, middle ear damage, cochlear injury, and/or temporal lobe lesions can cause auditory dysfunction.” (Rocchio, 1998)

Article Source: http://EzineArticles.com/534833

Diagnostic tests are needed from an Audiologist and ENT (ear, nose, throat) doctor to determine the cause of hearing loss. The hearing tests could include one or more the following:

  1. Audiogram – This test presents a series of frequencies from low to high pitches.
  2. Speech Testing – This test looks at how well words are listened to and repeated.
  3. Tympanometry – This test evaluates the middle ear function and stiffness of the eardrum.
  4. ABR (Auditory Brainstem Response) – This test measures the timing of electrical waves from the brainstem to clicks in the ear.
  5. Otoacoustic Emissions (OAEs) – This test evaluates the sounds given off by the inner ear when responding to a sound.
  6. Electrocochleography (ECOG) – This test identifies cochlear nerve issues and Meniere’s disease.

Article Source: https://www.asha.org/public/hearing/Otoacoustic-Emissions/

Some Audiologists perform Auditory Processing (CAPD) Tests. However, not every audiologist formally acknowledges CAPD. Explanations about different CAPD Tests are included in the following link: https://www.audiologyonline.com/articles/apd-in-children-time-compressed-11953

With information from the diagnostic tests, Audiologists identify the source of the hearing issue:

  1. Tinnitus occurs when there’s buzzing, ringing, or hissing in the ears.
  2. Hyperacusis (i.e. noise sensitivity) occurs when a sound is uncomfortable.
  3. Meniere’s Syndrome occurs there’s excessive pressure on the inner ear.
  4. Auditory Agnosia (i.e. CAPD) occurs when there’s a problem in distinguishing sounds.

A treatment plan will be made which could include hearing devices, Bluetooth devices, telephones, FM systems, and/or speech therapy.

Article Source: http://synapse.org.au/information-services/hearing-problems-after-a-brain-injury.aspx

Go out today and thank SPLs & Audiologists for the special work they do in helping brain injury survivors communicate….

~Megan, BIND Member

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

#ourvolunteersareawesome

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*Volunteers at BIND are such special people. Last year, alone, we were gifted with 2,620 volunteer hours, which is the equivalent of a full time employee working 40 hours a week. They are truly indispensable and we want them to know how thankful we are for them. They are heroes in championing our mission and supporting our cause. They help make a difference in the lives of BIND Members.

Every April we celebrate Volunteer Appreciation Month and it was a pleasure for me to have had the opportunity to interview just a few of the 40+ dedicated BIND volunteers.

Martha

  1. How did you get involved with BIND?

I met Valerie in rehab. I was her patient. She knew I was involved with arts and crafts and asked me to volunteer.

  1. Do you have any pets?

I have no pets except my husband, Kiver.

  1. What do you do to unwind?

I have been playing the piano since I was 3.

What members are saying about Martha:

-Her willingness to teach Art inspires me to be more creative.

-She brings the best out in me.

-She is a very good teacher and talented artist.

-She has a very good since of humor (she has to, to put up with all of us.).


Neeru

  1. How did you get involved with BIND?

I saw Yvette, Mark and Kevin do a presentation about BIND and loved it.

  1. Do you have any pets?

No, I do not.

  1. What do you do to unwind?

I like to read and watch T.V. a little.

What members are saying about Neeru:

  • I really enjoy playing brain games with her. It is amazing how much effort she puts in to coming up with something new each week.
  • She is just nice.
  • She really gets into her work to help others.
  • She is generous, talented, caring and sociable.


Emilie

  1. How did you get involved with BIND?

Medical Center Plano referred me here. I was an RN there for 50 years.

  1. Do you have any pets?

I don’t have any pets.

  1. What do you do to unwind?

Some of my favorite things are cooking, taking care of my herb garden, and watching T.V.

What members are saying about Emilie:

-She is smiling all the time.

-She is very helpful and goes above and beyond what needs to be done.

-She is a doll; she’s like the Mom that looks out for us all.

-She is kind, conscientious, and caring.


Karen

  1. How did you get involved with BIND?

I heard about BIND through the National Brain Tumor Society in Ft. Worth. I talked to members at a booth in the brain tumor support group. I starting volunteering after that.

  1. Do you have any pets?

I don’t but I have two grand dogs, which are corgi puppies, and are very, very cute.

  1. What do you do to unwind?

I enjoy quilting with my church, reading, and working out at the cancer fitness center with my husband.

What members are saying:

-She is very helpful and takes good care of us.

-She is very compassionate and just a nice lady.

-Big heart full of smiles.

-She fits in with all of us and relates well to everybody.

E.J.

  1. How did you get involved with BIND?

I am a student in Brightwood College and I got assigned to BIND to do my first field work.

  1. Do you have any pets?

No, but I used to have dogs.

  1. What do you do to unwind?

I watch movies, workout and play tennis every once in a while.

What members are saying:

-He brings such positive energy when he walks into the room.

-He does an outstanding job.

-He is a super nice guy.

-He is the most helpful young man I’ve ever seen.

This BLOG Post was Prepared by:

~Jenny, BIND Member

~With support from The Communications Unit

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Synapse Laps!

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CALLING ALL SUPERHEROES!

Saturday, March 24, 9 am to Noon
1416 Gables Court, Plano TX

Join us for the first-ever Synapse Laps event for BIND. Walk, jog, ride or roll with us at the BIND office park – every lap is 1/3 mile – and we’ll help count your laps.  Survivors, families, kids, and leashed pets are all welcome.

*Superhero costumes are encouraged*

This event is sponsored by Medical City Plano and a light lunch is sponsored by California Pizza Kitchen. We’ll also welcome therapy animals from Equest, games and activities for all ages, and the BIND Store will be open for business (BIND hats and shirts will be on sale!).  Thank you as well for your sponsorship to Modern Woodman Financial and Select Rehab Hospital in Denton.

Registration for Synapse Laps is FREE.  We are appreciative of those who can give a suggested $5/person donation onsite.  PLEASE ARRIVE PRIOR TO 9:15 am to park inside of our office park. By 9:20, the lot will be closed to through traffic so our walkers can safely begin at 9:30.  Other Questions?  Email us by clicking here.

REGISTER ON EVENTBRITE BY CLICKING HERE

March On…to a Support Group

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March 2018 Calendar for BLOG PDF

Area Brain Injury Support Groups

Allen:

Every 2nd Saturday each month
1:00 – 2:00 pm

Post-Acute Medical Rehabilitation Hospital
Meet in Team Conference Room
1001 Raintree Circle
Allen, TX 75013

972-908-2033 [Felicia] 972-908-2023 [Lesli]

Arlington:

Every 2nd Tuesday each month
1:00 – 2:30 pm

Center for Counseling
(provides simultaneous support groups for TBI survivors and caregivers)
301 South Center Street, Suite 214
Arlington, TX 76010

817-983-1087 [Deanna]

Dallas:

Every 1st Tuesday each month
2:00 – 3:00 pm

Baylor Institute for Rehabilitation
Tom Landry Building, 5th Floor
Meet in Yvonne Gawthier Conference Room

411 North Washington Avenue, Suite 5000
Dallas, TX 75246

214-820-5967 [Donna]

Every 1st Tuesday each month
6:30 – 8:00 pm

UT Southwestern
Zale Lipshy University Hospital
5151 Harry Hines Boulevard
Dallas, TX 75235

214-648-1754 [Dr. Brewer]

Denton:

Every 6 weeks on Wednesday
5:00 – 6:30 pm

Medical City Denton
Professional Office Building, Suite 310B
3535 South Interstate 35 E
Denton, TX 76210

940-384-3970 [Zachary or Carolyn]

Every 2nd Thursday each month
6:00 – 7:30 pm

Select Rehabilitation Hospital
Meet in Cafeteria
2620 Scripture Street
Denton, TX 76201

940-297-6500 [Front Desk]

Fort Worth:

Every 1st Tuesday each month (Aphasia only)
3:00 – 4:00 pm

Center for Neuro Skills (CNS)
6940 Harris Parkway
Fort Worth, TX 76132
kscheirman@neuroskills.com [Kristen]

Frisco:

Every 2nd Tuesday each month
6:00-7:00 pm

Baylor Institute for Rehabilitation
Meet in Café
2990 Legacy Drive
Frisco, TX 75034

kirunkle@bir-rehab.com [Kirsten]

Irving:

Every 2nd Wednesday each month
3:00 – 4:00 pm

Baylor Scott & White Medical
Office Building II
5th Floor Rehab Unit

1901 North MacArthur Boulevard
Irving, TX 75061

972-579-8511 [Renee] Renee.vickers@bswhealth.org

 

Every Friday (Aphasia only)
1:00 – 2:00 pm

Center for Neuro Skills (CNS)
1320 West Walnut Hill Lane
Irving, TX 75038

972-580-8500
kscheirman@neuroskills.com

McKinney:

Every 3rd Friday each month
10:00 am – 12:00 pm
Every 1st Tuesday each month
7:00 – 8:30 pm

Stonebridge United Methodist Church
1800 South Stonebridge Drive
McKinney, TX 75070

940-206-2069

Every 2nd Wednesday each month
11:30 – 12:30 pm

Medical City McKinney
4500 Medical Center Drive
Meet in Classrooms 3 and 4
McKinney, TX 75069

972-548-5491 [Jennifer] (RSVP’s appreciated 1 week in advance)

Plano:

Every 1st Monday each month
3:00 – 4:30 pm

Medical City Plano
Medical Office Building 3, 1st Floor
Meet in Community Classroom

3901 West 15th Street
Plano, TX 75075

972-519-1583
(RSVP’s appreciated 1 week in advance for provided lunch)

Every 1st Friday each month
2:00 – 3:00 pm

Accel Rehabilitation Hospital
2301 Marsh Lane
Plano, TX 75093

214-695-6479 [Nikole]

Every 2nd Tuesday each month
7:00 – 9:00 pm

Grey Matters North Texas Brain Tumor Support Group
HealthSouth Plano Rehabilitation Hospital
2800 West 15th Street
Plano, TX 75075

GreyMattersNorthTexas@yahoo.com [Karen] www.Greymatters.us


Every other Wednesday
(twice per month)
11:00 am – 2:00 pm

Nueva Vida (Spanish Speaking Group)
BIND Clubhouse
1416 Gables Court
Plano, Texas 75075

972-769-2463
Email for dates: members@thebind.org

Richardson:

Every 4th Friday each month at
1:30 – 3:00 pm

HealthSouth Rehabilitation Hospital
Meet in Cafeteria
3351 Waterview Parkway
Richardson, TX 75080

972-400-2196 [Laura]

Various Locations:

Social, community-based events scheduled every month
Young Adult Group Survivors (YAGS)
gordlovesloopy@sbcglobal.net [Rebecca]

*Please email or call BIND with any information on changes or addition to support groups in the area: outreach@thebind.org or 972-769-BIND (2463).

Last updated: 2/26/2018                  

Pizza With Purpose

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Let’s do Lunch!  Or dinner…..at California Pizza Kitchen in Plano – March 7 & 8.  Present this flyer to your server and they’ll donate 20% of your total bill to BIND.  Thank you to the Willow Bend CPK manager, Rachel, and her team for supporting our organization!

Allen Americans Hockey – plays for BIND!

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Join us Friday, February 2 when the doors open at 6:05 pm for Allen Americans vs. Colorado Eagles.  Tickets are only $19 each and $2 of each seat purchased through this link will be donated to BIND.  Thank you to the Allen Americans for this generous, fun opportunity!

Please note: if you need disability-friendly seating, please add that in comments when purchasing your ticket.

Go to this website for everything else you need to know: http://allenamericans.com/bind/

Veteran’s Day Deals & Discounts

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In honor of our Veterans, the Outreach & Advocacy Unit at BIND compiled a list of our area’s best deals and discounts.  Enjoy!

Nov. 7th- 11th Texas de Brazil 50% off of Dinner + 1, rest of Table receives 20% off.
Nov. 7th- 11th IKEA Free Entrée’
Nov. 9th-11th Red Hot & Blue Free Entrée with the purchase of a second entrée
Nov. 10th-11th Bed, Bath, & Beyond 25% off entrée purchase
Nov. 10th-11th World Market 25% off entire purchase in stores
Nov. 10th-11th BJ’s Resturant & Brewhouse Complimentary entrée up to $12.95
Nov. 10th-11th Red Lobster Free Appetizer or Dessert from a limited menu
Nov. 11th Carmike Cinemas Free small Popcorn w/ ticket purchase
Nov. 11th Main Event Bowl for Free from open to 3pm.
Nov. 11th Great Clips Free Haircut or Haircut Card good until Dec. 31st.
Nov. 11th Sport Clips Free Haircut
Nov. 11th Dollar General 11% discount on Qualified purchases
Nov. 11th Meineke Free Oil Change
Nov. 11th Tractor Supply 15% discount on in store purchases
Nov. 11th Applebee’s Free Meal from a limited menu
Nov. 11th CiCi’s Pizza Free Pizza Buffet
Nov. 11th Cotton Patch Café Free Chicken Fried Steak or Chicken Fried Chicken
Nov. 11th Boston Market Free Brownie or Cookie
Nov. 11th Buffalo Wild Wings One small order of wings and side of fries
Nov. 11th California Pizza Kitchen Complimentary entrée from special menu
Nov. 11th Cantina Laredo Complimentary meal up to $15
Nov. 11th On the Border Free combo meal
Nov. 11th Texas Roadhouse Free Lunch from 11-2
Nov.11th Cattlemen’s Complimentary 8oz. Sirlon Steak Dinner
Nov. 11th Chili’s Free Meal from a limited menu
Nov. 11th Chipotle BOGO deal from 3-Close
Nov. 11th Chuck E. Cheese Free Individual 1 topping pizza
Nov. 11th Cracker Barrel Complimentary Slice of Double Chocolate Fudge Coca Cola Cake
Nov. 11th Denny’s Free Build Your Own Grand Slam from 5-12
Nov. 11th Dickey’s BBQ Free Meal and a Big Yellow Cup
Nov. 11th El Fenix Free Meal from a select menu
Nov. 11th Furr’s Buffet Free Buffet and drink
Nov. 11th Hooter’s Free Meal from Select menu
Nov. 11th IHOP Free Red, White, & Blue pancakes from 7-7
Nov. 11th Johnny Carino’s Free Meal
Nov. 11th Krispy Kreme Free Doughnut and Small coffee
Nov. 11th Little Caesars Pizza Free $5 Lunch combo from 11-2
Nov. 11th Olive Garden Free Entrée from Special Menu
Nov. 11th Quaker Steak & Lube Complimentary or discounted Meal of their choice
Nov. 11th Red Robin Free Red’s Tavern Double Burger w/ Bottomless Steak Fries
Nov. 11th Rock & Brews Complimentary Pulled Pork Sandwich
Nov. 11th Ruby Tuesday Free Appetizer
Nov. 11th Snuffer’s Resturant & Bar Free Burger
Nov. 11th Starbucks Vets and Spouces get a Free Tall Coffee
Nov. 11th TGI Friday Free Lunch from 11-2
Nov. 11th Twin Peaks Free Menu item from their Annual Veteran’s Day Apprecication Menu
Nov. 11th World of Beer Free Select Draught Beer
Nov. 11th Outback Steakhouse Free Bloomin Onion and Beverage
Nov. 11th-13th Spaghetti Warehouse Buy One Entrée and Get the Second Entrée Free
Nov. 11th-13th Firestone Complete Auto Care Additional 10% off the Lowest Ad Price
Nov. 12th- Dec. 31 Outback Steakhouse 15% off their Meals
Nov. 13th Golden Coral Free Dinner from 5-9